Donations

Make a donation and help make a difference. Your donations count and will go directly towards helping us to provide vital support to sufferers of leukodystrophy.

Online donation:


A general donation will help the ALDS to support leukodystrophy sufferers and their families. We endeavour to keep our focus firmly on affected members. If requested, a general donation of $100 can be given directly to families.

Phone

Toll-Free 1800 141 400 (Australian residents only)
Phone +61 3 9845 2831

Our business hours are 10.00am to 4.00pm weekdays. Please leave a message and your call will be attended to as soon as possible. We’d love to hear from you.

Fax

Download and complete our Donations Form (PDF 120kb) and fax it to +61 3 9583 4379.

Mail

Send a completed Donations Form (PDF 120kb) with your credit card details or cheque
(payable to the Australian Leukodystrophy Support Group Inc) and post to:

ALDS
Nerve Centre Building
54 Railway Road
Blackburn VIC 3130
Australia

Did you know?

The Australian Leukodystrophy Support Group Inc (ALDS) is a voluntary, non-profit organisation that helps raise funds to provide counselling, support and information to families and individuals affected by leukodystrophy.

Our organisation exists through limited support from government and generous donations from organisations and individuals, enabling us to fulfil our mission and aims.

The limited support from government is simply because leukodystrophy, by its nature, only affects a very small percentage of the population and the government has other health funding priorities.
We rely on paid memberships and donations to fund our work to support people affected by leukodystrophy.

The ALDS is recognised by the Australian Government as a charity for tax deduction purposes.
All donations above $2 are tax deductible.

Approximate costs of aids, equipment and renovations

  • Bed pressure management devices, such as an electric mattress – $3,000
  • Bed rails and bed barriers – $1,000
  • Bed (electric) – $5,500
  • Bed (electric) safe surround – $17,000
  • Ceiling hoist – $4,000
  • Communication device – $350 to $15,000
  • Home modifications – bathroom, $20,000; internal access – $2,000; ramp, $4,000
  • Manual wheelchair – $8,300
  • Mobile hoist – $3,400
  • Mobile shower/commode – $3,000
  • Mobility pushers – $4,800
  • Orthotics (including AFOs, crutches and quad sticks) – $330
  • Portable bath hoist – $2,500
  • Portable ramp – $700
  • Positioning system (night time) – $2,000
  • Postural chair (includes corner seat) – $3,900
  • Powered wheelchair – $15,000
  • Shower chairs and toilet chairs – $3,000
  • Slings for hoists – $540
  • Speech pathology device mounting system – $1,500
  • Standing frame – $3,000
  • Walking frame – $400 to $3,800

Continence aids are very costly to families

For people in Victoria, the Victorian Aids and Equipment Program (VAEP) Guidelines provide a very comprehensive list of equipment, aids and services that may be subsidised.

For people in South Australia, Novita Children’s Services is an organisation who can provide therapy, equipment and home support services – www.novita.org.au.

Similar programs exist in all states. However, surveys conducted by various organisations have found that these subsidies generally contribute only partially to the costs involved. Individuals and families are therefore required to seek top-up funding. There are long delays first in obtaining approval, and then in actually receiving the goods or services. Once aids and equipment are obtained, there are further delays in modifying them so they are ready for use. Changing circumstances are not always taken into consideration. This is especially so with a growing child, or someone with a condition that is deteriorating.

You can access a survey on the VAEP conducted by Scope, a non-profit organisation which provides disability services throughout Victoria.

Families may seek assistance from the ALDS when there are inadequacies in government support and funding.

Questions?

If you have any questions about making a donation, please view our Questions page or contact us.

Thank you

We thank most sincerely all individuals, groups and organisations who give so generously to our group. Without them, the ALDS would not be able to maintain the high level of support that all leukodystrophy families deserve. View our Thank you page of recognition.