From Point AA to Point B

ALDS has been at the receiving end of the generous and open hearted kindness of Mr John Olsen more than once – you may recall that John walked $7,041 km’s to raise funds on our behalf and became our Ambassador in March 2009. John continues to be a person who thinks about others and has once more allowed ALDS to be the financial benefactor of his latest endeavour. We’re here to tell you about the latest feather in John Olsen’s cap – a book detailing John’s personal story (warts a...

February 13th, 2012 | Categories: Fundraising, News

Child Neurology Congress Conference

Child Neurology Congress Conference – Brisbane, 27th May to 1st June 2012. This conference does not directly address Leukodystrophy issues but may address other issues of relevance. Please take a look to see if this conference could be of interest to you. http://eventcampaign.com.au/enews/icnc2012/icnc2012-6.html

January 27th, 2012 | Categories: Conferences

Rare Gems December Issue

View the Rare Gem December Newsletter

January 23rd, 2012 | Categories: News

VICTORIAN SOCIAL GATHERING

WHAT A LOVELY DAY!!! – The first Victorian Social Gathering for quite some time took place on Sunday 23rd October at Bundoora Park. This was a lovely location for a gathering because people could come and go as they pleased – meandering between the ‘Party Barn’, the farm animals, rides or just a walk. It was a small but happy gathering and we thank all those in attendance for taking the time to join us. We look forward to another ALDS Family Gathering in the future. Please take a...

November 30th, 2011 | Categories: Events, News

WA THEATRE NIGHT

Veronica Seeber and the Stirling Players provided Western Australian members and friends with a wonderful evening on Thursday 10th November. The comedy play ‘A Better You’ was a hit with the audience and the evening raised much needed funds for our group. Special thanks to Veronica for the work she did in organising the event – cooking much of the supper, providing and sourcing prizes for the raffle, posting tickets and liaising with the venue – to mention just a few of her tasks.  ...

November 30th, 2011 | Categories: News