RACE TO CURE LEUKODYSTROPHY
Invitation to support ALDS in our RACE TO CURE LEUKODYSTROPHY at the 2013 Sydney Morning Herald Half Marathon Some of you would have already heard of Associate Professor Matthias Klugmann who is doing amazing work with his Sydney based team in the race to a cure for leukodystrophies, devastating neurological disorders also known as myelin diseases. The members of this research team have now united to swap their lab coats for singlets to pound the Sydney pavements in the upcoming Sydney Morning H...
Gene Discovery – A Leap Beyond
Originally published in The Courier-Mail by Janelle Miles in October 2012, read about the enduring research and wonderful discovery, in particular with reference to our lovely Damiani family and little Massimo.
October 30th, 2012 | Categories: News
Australian Transplant Games
We are so proud of Josh Yates, an ALDS WA member who recently attended the Australian Transplant Games in Newcastle NSW. Josh won 9 medals most of which were in his age group 18-29 years and just to put those performances into perspective, we believe Josh was the only athlete at the games who in addition to being a transplantee, also happened to be legally blind. Congratulations Josh. Gold – 5km Race Walk (all ages) Silver – Pétanque – Singles Silver – Badminton – Singles ...
October 30th, 2012 | Categories: Events, Fundraising, News
Golf Day
It was a cool and overcast day for our 4th Annual Fundraising Golf Day, but luckily there was little wind and this somewhat grey day, was not at all marred by the weather. Indeed it was a stark contrast and marvellous success, as unperturbed, the golfers enjoyed their round while other guests enjoyed the hospitality and warm atmosphere of the Macquarie Links Golf Club and ALDS. There were plenty of volunteers on hand, in particular Maria Gambone who together with partner Glenn Smith joined Ann...
October 30th, 2012 | Categories: Events, Fundraising, News
Melbourne Marathon
On Sunday, 14th October, our very own Adrian Stephenson, after months of pounding the tracks and concrete of Melbourne with its four seasons in one day, ran a mighty race in Melbourne’s premier running festival and managed to raise an even mightier $6,156 for ALDS and their families. Yes he did it!! Adrian managed to finish in 1 hour 52 minutes – a PB to boot! Adrian’s run was dedicated to the loving memory of his brother Damon, born 2 February 1998 and died on 28 September 2000 of a L...
ALDS June 2012 Newsletter
June 2012 Newsletter
June 19th, 2012 | Categories: Articles, News, Newsletter
The Here and Now
Thank you to the Good Weekend magazine for allowing us to reprint an excerpt from the article written by Fiona Harari and to Earl, Deb, Jess and Ariel Schonberger for their openness and honesty by participating in this story. Read the article Here and Now for a glimpse into the life of just one of our ALDS families.
April 23rd, 2012 | Categories: News
20th Anniversary Conference
‘Honoring the Past, Celebrating the Present, Facing the Future Together’ The ALDS 20th Anniversary Conference is taking place on August 18th and 19th 2012 at the Novotel St Kilda, 16 Esplanade St Kilda Vic 3182. We are pleased to be supporting the attendance of ALDS families and friends from around Australia on this special occasion. We have secured a wonderful group of guest speakers and invite you to take a look at our conference flyer for information about session presenters, topics and ...
April 2nd, 2012 | Categories: Conferences, Events, News
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