2014 Melbourne Golf Day & Luncheon

Format: Team Ambrose Date: Wednesday 10 December 2014 Time: 7am Arrival/Registration, 8am shotgun start Luncheon: 1pm 2.45 Presentations Location: Woodlands Golf Club, Mordialloc, Victoria Details: We invite you, your colleagues and corporate rivals to put just 7-8 hours in your life aside and help us to ‘make a difference’ by joining us in a round of golf at the beautiful Woodlands Golf Club Sponsorship packages available Raffles & various on-course competitions Expressions of i...

March 3rd, 2014 | Categories: Events, Fundraising, News

Breaking the Gene Code

Philippa Macken explains how our own genetic cocktail can have fatal consequences for our children. webchild.com.au Sydney’s Child December 2013 • January 2014 Read it here

January 7th, 2014 | Categories: News

Spring 2013 Newsletter

View the Spring 2013 Newsletter

November 22nd, 2013 | Categories: News, Newsletter

Show n Shine

Show – N – Shine Date: 08 Dec 2013 Time: 10 am – 3 pm Location: Fleet Air Arm Museum, HMAS Albatross, Nowra Details $15 Pre-registration entry / $20 On the day gate entry Spectator – Gold coin donation Alcohol free even, featuring live entertainment and fun family activities All funds raised will be donated to JDRD and Australian Leukodystrophy Support Group For further information and entry form go to: www.navy.gov.au/event/albatross-show-n-shine-2013 Contact details: St...

November 19th, 2013 | Categories: Events, Fundraising, News

Australian Story: Cracking the Code

Australian Story: Cracking the Code AEST Monday October 21, 8pm on ABC1 Introduced by Dr Norman Swan, Radio National Health Report This is a story of hope and the discovery of an incredibly rare disease. Architected by a man who had no medical training whatsoever – just a son with a shocking illness nobody in the world could name – and executed by a young, driven, genetic scientist who also believed in this different way to look at medicine. It’s the Lorenzo’s Oil of genetic and ...

October 18th, 2013 | Categories: Events, News

17 August marks the 21st year that the ALDS has been raising funds

17 August marks the 21st year that the ALDS has been raising funds to provide counselling, support and information to families and individuals affected by leukodystrophy! We would like to acknowledge all who have been part of this journey and recognise Sr Julie Thomas for founding this wonderful organisation!

October 1st, 2013 | Categories: News

Decoding Massimo

The Australian | July 2013 The quest to find a diagnosis for one boy’s rare genetic disease led to a discovery “no less monumental than landing a man on the moon”. Click Here for full article.

July 22nd, 2013 | Categories: News

Inspiring Josh to Help Country Kids

June 10th, 2013 | Categories: Articles, News

RACE TO CURE LEUKODYSTROPHY

Invitation to support ALDS in our RACE TO CURE LEUKODYSTROPHY at the 2013 Sydney Morning Herald Half Marathon Some of you would have already heard of Associate Professor Matthias Klugmann who is doing amazing work with his Sydney based team in the race to a cure for leukodystrophies, devastating neurological disorders also known as myelin diseases. The members of this research team have now united to swap their lab coats for singlets to pound the Sydney pavements in the upcoming Sydney Morning H...

May 17th, 2013 | Categories: Events, News

Inspiring Josh to help country kids

April 18th, 2013 | Categories: News