Thank you to the Good Weekend magazine for allowing us to reprint an excerpt from the article written by Fiona Harari and to Earl, Deb, Jess and Ariel Schonberger for their openness and honesty by participating in this story. Read the article Here and Now for a glimpse into the life of just one of our ALDS families.
April 23rd, 2012 | Categories: News
‘Honoring the Past, Celebrating the Present, Facing the Future Together’ The ALDS is holding a conference on August 18th and 19th 2012 – it is our 20th Anniversary so it will be just ‘a little bit special’. Our members have received a preliminary invitation and information about the conference and we look forward to seeing as many as possible at this ‘milestone’ event. We will provide updates to everyone as the finer details are confirmed. Please visit our website and face book...
April 2nd, 2012 | Categories: Conferences, Events, News
Events for World Rare Disease Day will be occurring in many locations around the country between 22nd February to the 3rd March. To locate an event near you, please click on the link – http://www.rarediseaseday.org/country/au/australia.
For NSW families and other interested parties, the Resourcing Families organisation is holding a special event to provide information and resources to NSW families. ‘More Choice and More Control’ – NSW Family Stories of Creating Inclusive Lives will take place on Friday 9th March 2012 at the Ryde/Eastwood Leagues Club. For more information and contact details regarding this event
February 23rd, 2012 | Categories: News
‘Who are the Winners and Who are the Losers?’ National Disability Insurance Scheme Agenda Feb 2012 A forum for Victorian residents is to be held at the Epilepsy Foundation Victoria, 818 Bourke Road, Camberwell from 2pm to 5pm on Tuesday 28 February 2012 The Forum is to be hosted by Mr Graeme Shears from Epilepsy Foundation Victoria The Guest Speaker is Mr John Cain, Special Projects Officer, Maurice Blackburn Lawyers Panel of representatives of Chronic Illness Alliance members This will be a...
ALDS has been at the receiving end of the generous and open hearted kindness of Mr John Olsen more than once – you may recall that John walked $7,041 km’s to raise funds on our behalf and became our Ambassador in March 2009. John continues to be a person who thinks about others and has once more allowed ALDS to be the financial benefactor of his latest endeavour. We’re here to tell you about the latest feather in John Olsen’s cap – a book detailing John’s personal story (warts a...
February 13th, 2012 | Categories: Fundraising, News
View the Rare Gem December Newsletter
January 23rd, 2012 | Categories: News
WHAT A LOVELY DAY!!! – The first Victorian Social Gathering for quite some time took place on Sunday 23rd October at Bundoora Park. This was a lovely location for a gathering because people could come and go as they pleased – meandering between the ‘Party Barn’, the farm animals, rides or just a walk. It was a small but happy gathering and we thank all those in attendance for taking the time to join us. We look forward to another ALDS Family Gathering in the future. Please take a...
Veronica Seeber and the Stirling Players provided Western Australian members and friends with a wonderful evening on Thursday 10th November. The comedy play ‘A Better You’ was a hit with the audience and the evening raised much needed funds for our group. Special thanks to Veronica for the work she did in organising the event – cooking much of the supper, providing and sourcing prizes for the raffle, posting tickets and liaising with the venue – to mention just a few of her tasks. ...
November 30th, 2011 | Categories: News
Marie Grafen and her friends at the Mission Awareness Group provided ALDS with a very warm welcome at the fundraising Springtime Luncheon which was held on Wednesday 16th November. Marie and her team always have a lovely day planned. The generosity and enthusiasm of this group of ladies (and a few gentlemen) has been instrumental in providing support for families for 10 years now. We consider ourselves very lucky indeed to have been supported for so long by Marie and are grateful to all who orga...