We are so proud of Josh Yates, an ALDS WA member who recently attended the Australian Transplant Games in Newcastle NSW. Josh won 9 medals most of which were in his age group 18-29 years and just to put those performances into perspective, we believe Josh was the only athlete at the games who in addition to being a transplantee, also happened to be legally blind. Congratulations Josh. Gold – 5km Race Walk (all ages) Silver – Pétanque – Singles Silver – Badminton – Singles ...
October 30th, 2012 | Categories: Events, Fundraising, News
It was a cool and overcast day for our 4th Annual Fundraising Golf Day, but luckily there was little wind and this somewhat grey day, was not at all marred by the weather. Indeed it was a stark contrast and marvellous success, as unperturbed, the golfers enjoyed their round while other guests enjoyed the hospitality and warm atmosphere of the Macquarie Links Golf Club and ALDS. There were plenty of volunteers on hand, in particular Maria Gambone who together with partner Glenn Smith joined Ann...
October 30th, 2012 | Categories: Events, Fundraising, News
MELBOURNE MARATHON – Sunday 14th October Please get behind ALDS past Treasurer, Mr Adrian Stephenson, in his effort to raise funds and to raise awareness of Leukodystrophy and ALDS by participating in the Melbourne Marathon in a half marathon event. Adrian has done all the hard work by getting fit and committing his time and energy to training. Hopefully those who read our newsletter can take care of the easy part by logging onto Adrian’s page at the Go Fundraise website and registering ...
September 24th, 2012 | Categories: Events, Fundraising
In the 20 years since the formation of the Australian Leukodystrophy Support group, many individuals and families have been assisted in so many ways, as they have battled the devastating impact of Leukodystrophies. At this year’s golf day, we have a very special speaker who will share how he has and continues to rise above the Leukodystrophy challenge. 8am (tee-off) Thursday 11th October 2012 @ Macquarie Links International Golf Club, Macquarie Links, Sydney (Format: Team Ambrose) Event Day p...
August 31st, 2012 | Categories: Events, Fundraising
ALDS has been at the receiving end of the generous and open hearted kindness of Mr John Olsen more than once – you may recall that John walked $7,041 km’s to raise funds on our behalf and became our Ambassador in March 2009. John continues to be a person who thinks about others and has once more allowed ALDS to be the financial benefactor of his latest endeavour. We’re here to tell you about the latest feather in John Olsen’s cap – a book detailing John’s personal story (warts a...
February 13th, 2012 | Categories: Fundraising, News
It is our pleasure to invite our WA Families, Friends and Supporters to attend a fundraising Theatre Night and Social Gathering on Thursday 10th November 2011. Veronica Seeber, an ALDS friend, fundraiser and ex state representative, has organised the theatre night which features a comedy play ‘A Better You’. The play, written by Mark C Bourne, will be performed by The Stirling Players at the Stirling Theatre, Morris Place, Innaloo. The show starts at 8.00pm and concludes at 10.00pm. Tickets ...
November 3rd, 2011 | Categories: Events, Fundraising
All good things happen to those who wait – and the 3rd ALDS Fundraising Golf Day was our best yet. We received the highest amount of registrations so far, the sun was out (maybe a little windy and cool) and it didn’t rain. Most importantly, everyone enjoyed the golf and the lunch and presentations that followed. There are many thank you’s to give and some names are mentioned below. The ALDS takes this opportunity to thank each and every person who contributed to our golf day. Our sponsors...
October 31st, 2011 | Categories: Fundraising, News
The annual Charity Challenge Ball will be held on Saturday 26th November. ALDS will again be purchasing tables for our families, supporters, friends and committee to attend this very special event at the Hilton Hotel Sydney from 6.30pm till late. The ball is guaranteed to be a lot of fun with fine food, wine and entertainment. For NSW families, please consider whether you would like to join one of our tables. Please contact our office for more information. The more items we are able to provide f...
September 28th, 2011 | Categories: Events, Fundraising
We are very grateful to Paresh Valob and his family for organising a fundraising concert which will take place on Saturday 1st October from 6.30pm till 9.30pm. The venue is the Rowville Secondary College Performing Arts Centre, 6 Humphreys Way, Rowville Victoria. Please take a look at the flyer to consider if you would like to attend. To purchase tickets please contact the ALDS office.
September 26th, 2011 | Categories: Fundraising
Leukodystrophy Golf Day 11th October 2011 and registration We are only 5 weeks away from the 3rd ALDS Fundraising Golf Day. To reserve a place please register your attendance now. The golf day will again be held at the Macquarie Links Golf Club in Sydney and the date is Tuesday 11th October. Earl Schonberger has been working with the management and administrative team at Macquarie Links and our good friend Mr Gary Dawson from Challenge Fund Incorporated to ensure a successful day. After doubling...
September 6th, 2011 | Categories: Events, Fundraising, News