20th Anniversary Conference
‘Honoring the Past, Celebrating the Present, Facing the Future Together’ The ALDS is holding a conference on August 18th and 19th 2012 – it is our 20th Anniversary so it will be just ‘a little bit special’. Our members have received a preliminary invitation and information about the conference and we look forward to seeing as many as possible at this ‘milestone’ event. We will provide updates to everyone as the finer details are confirmed. Please visit our website and face book...
April 2nd, 2012 | Categories: Conferences, Events, News
World Rare Disease Day
Events for World Rare Disease Day will be occurring in many locations around the country between 22nd February to the 3rd March. To locate an event near you, please click on the link – http://www.rarediseaseday.org/country/au/australia.
National Disability Insurance Scheme
‘Who are the Winners and Who are the Losers?’ National Disability Insurance Scheme Agenda Feb 2012 A forum for Victorian residents is to be held at the Epilepsy Foundation Victoria, 818 Bourke Road, Camberwell from 2pm to 5pm on Tuesday 28 February 2012 The Forum is to be hosted by Mr Graeme Shears from Epilepsy Foundation Victoria The Guest Speaker is Mr John Cain, Special Projects Officer, Maurice Blackburn Lawyers Panel of representatives of Chronic Illness Alliance members This will be a...
VICTORIAN SOCIAL GATHERING
WHAT A LOVELY DAY!!! – The first Victorian Social Gathering for quite some time took place on Sunday 23rd October at Bundoora Park. This was a lovely location for a gathering because people could come and go as they pleased – meandering between the ‘Party Barn’, the farm animals, rides or just a walk. It was a small but happy gathering and we thank all those in attendance for taking the time to join us. We look forward to another ALDS Family Gathering in the future. Please take a...
SPRINGTIME LUNCHEON
Marie Grafen and her friends at the Mission Awareness Group provided ALDS with a very warm welcome at the fundraising Springtime Luncheon which was held on Wednesday 16th November. Marie and her team always have a lovely day planned. The generosity and enthusiasm of this group of ladies (and a few gentlemen) has been instrumental in providing support for families for 10 years now. We consider ourselves very lucky indeed to have been supported for so long by Marie and are grateful to all who orga...
Western Australian Fundraising Theatre Night
It is our pleasure to invite our WA Families, Friends and Supporters to attend a fundraising Theatre Night and Social Gathering on Thursday 10th November 2011. Veronica Seeber, an ALDS friend, fundraiser and ex state representative, has organised the theatre night which features a comedy play ‘A Better You’. The play, written by Mark C Bourne, will be performed by The Stirling Players at the Stirling Theatre, Morris Place, Innaloo. The show starts at 8.00pm and concludes at 10.00pm. Tickets ...
November 3rd, 2011 | Categories: Events, Fundraising
NSW Fundraising Charity Challenge Ball
The annual Charity Challenge Ball will be held on Saturday 26th November. ALDS will again be purchasing tables for our families, supporters, friends and committee to attend this very special event at the Hilton Hotel Sydney from 6.30pm till late. The ball is guaranteed to be a lot of fun with fine food, wine and entertainment. For NSW families, please consider whether you would like to join one of our tables. Please contact our office for more information. The more items we are able to provide f...
September 28th, 2011 | Categories: Events, Fundraising
3rd ALDS Fundraising Golf Day Registration
Leukodystrophy Golf Day 11th October 2011 and registration We are only 5 weeks away from the 3rd ALDS Fundraising Golf Day. To reserve a place please register your attendance now. The golf day will again be held at the Macquarie Links Golf Club in Sydney and the date is Tuesday 11th October. Earl Schonberger has been working with the management and administrative team at Macquarie Links and our good friend Mr Gary Dawson from Challenge Fund Incorporated to ensure a successful day. After doubling...
September 6th, 2011 | Categories: Events, Fundraising, News
MLD Foundation Family Conference – Melbourne 2011
The MLD Foundation Family Conference was held in Melbourne on Saturday 19th March 2011 from 1.00pm till 8.00pm at Rydges Bell City Hotel and Conference Centre, 215 Bell Street, Preston. The attendance of 46 comprised ALDS families, committee and staff; MLD Foundation, Guest Speaker Professor John Hopwood and panellists – Melissa Heywood, Royal Children’s Hospital Palliative Care; Sarah Connolly, RCH Social Worker, Andrea Murphy, Very Special Kids; Christina Kelly, Make A Wish Founda...
March 28th, 2011 | Categories: Conferences, Events, News
3rd ALDS Golf Day 11/10/11 – Sydney
Click here for Registration Form Hot on the heels of last years golf day is the 3rd Annual Leukodystrophy Fundraising Golf Day which will again be held at the Macquarie Links Golf Club in Sydney . Please reserve Tuesday 11th October in your diaries for this event. We look forward to working with the management and administrative team at Macquarie Links and also our good friend and supporter Mr Gary Dawson from Challenge Fund Incorporated to make this day a success. To those who enjoyed the hosp...
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