AGM – Gene Therapy for Leukodystrophy

There is currently very little research into white matter diseases in Australia. This has changed when Associate Professor Matthias Klugmann and his team started their work in the Translational Neuroscience Facility at the University of New South Wales (UNSW) in 2010. Since then Matthias was awarded a prestigious Future Fellowship by the Australian Research Council (ARC) for his research program on the role of a major brain metabolite in the etiology of leukodystrophies. More good news followed...

December 17th, 2012 | Categories: Articles, Conferences

20th Anniversary Conference

The ALDS 20th Anniversary Conference took place on August 18th and 19th at the Novotel St Kilda. Please view our conference report and acknowledgements. For information about copies of presentations please contact mail@alds.org.au or phone 0418755994. You might like to show your support of our group and assist with fundraising by purchasing conference merchandise which will be available for the remainder of this year. Please visit our store to celebrate with us and Help Raise Funds for ALDS.

September 24th, 2012 | Categories: Conferences, Events

20th Anniversary Conference

‘Honoring the Past, Celebrating the Present, Facing the Future Together’ The ALDS 20th Anniversary Conference is taking place on August 18th and 19th 2012 at the Novotel St Kilda, 16 Esplanade St Kilda Vic 3182. We are pleased to be supporting the attendance of ALDS families and friends from around Australia on this special occasion. We have secured a wonderful group of guest speakers and invite you to take a look at our conference flyer for information about session presenters, topics and ...

April 2nd, 2012 | Categories: Conferences, Events, News

Child Neurology Congress Conference

Child Neurology Congress Conference – Brisbane, 27th May to 1st June 2012. This conference does not directly address Leukodystrophy issues but may address other issues of relevance. Please take a look to see if this conference could be of interest to you. http://eventcampaign.com.au/enews/icnc2012/icnc2012-6.html

January 27th, 2012 | Categories: Conferences

MLD Foundation Family Conference – Melbourne 2011

The MLD Foundation Family Conference was held in Melbourne on Saturday 19th March 2011 from 1.00pm till 8.00pm at Rydges Bell City Hotel and Conference Centre, 215 Bell Street, Preston. The attendance of 46 comprised ALDS families, committee and staff; MLD Foundation, Guest Speaker Professor John Hopwood and panellists – Melissa Heywood, Royal Children’s Hospital Palliative Care; Sarah Connolly, RCH Social Worker, Andrea Murphy, Very Special Kids; Christina Kelly, Make A Wish Founda...

March 28th, 2011 | Categories: Conferences, Events, News