Our mission and aims
Mission
To provide assistance and information to those affected by leukodystrophy and to support research into leukodystrophy.
Aims
Our activities raise awareness of leukodystrophy, improve the availability of information, and raise funds for families affected by the disease.
We aim to:
- provide professional counselling, encouragement and support to anyone affected, either directly or indirectly, by leukodystrophy
- act as a source of information for those affected by, or interested in, the range of leukodystrophies
- raise funds and provide financial support for families affected by leukodystrophy
- increase public awareness of leukodystrophy
- where possible, support research
The ways in which the ALDS does this include through:
- the ALDS website
- our quarterly newsletter
- the ALDS Family Information Kit
- social gatherings
- fundraising activities
- guest speakers at the AGM
- the ALDS Conference
- our promotional DVD
Constitution
View our Constitution (PDF 658kb)
