Burnet Family Story

Recently published in the Melbourne Herald Sun is a story from the Burnet Family. Please take a look at the links below to read their full story. Matching genes a mortal tragedy Love like there is no tomorrow for Charlie and Sebastian Burnet

September 15th, 2010 | Categories: News

Special Note to Families

Please see our Equipment loans under How we can help to see what items of specialised equipment ALDS has available for loan at this time and contact our office if you need any of these items. Please remember that families can contact their State Rep or our Family Advocate if there is a piece of equipment that you need right now but are having difficulty obtaining on your own.

September 15th, 2010 | Categories: News

Help Us Help You

ALDS is happy to endorse the Governments latest efforts to ensure that the needs of people living with a disability will be more effectively taken care of in the future by asking all families and interested parties to make a submission to the Australian Government Productivity Commission Public Enquiry into Disability Care and Support. Please follow the link to the National Disability Insurance Scheme website or the link to the Productivity Commission website where you can find further informati...

September 15th, 2010 | Categories: News

ALDS Promotional DVD

If you would like to purchase a copy of the ALDS Promotional DVD which runs for 25 minutes and has been created to promote the ALDS, aid fundraising and provide information to individuals effected by Leukodystrophy and to the medical community please contact our office on (03)98452831 or email mail@alds.org.au Please see our Acknowledgements page for a list of those people who assisted in the production of this DVD.

September 15th, 2010 | Categories: Publication

Make-A-Wish Foundation of Australia

Make-A-Wish Australia grants the cherished Wishes of children with life-threatening medical conditions. A Wish creates a world of joy, laughter and smiles. Wishes come in many shapes and sizes; to be a ballerina for a day, to have a cubby house, to meet a favourite celebrity or to go on a family holiday. The magic begins when the child utters the words, ‘I Wish’. Children and teenagers aged from three up to 18 with a life-threatening medical condition are able to apply for a wish. It...

September 15th, 2010 | Categories: News

Book of Stories – 4th Edition

A big thank you to all families who have taken the time to write their story for the 4th Edition of Book of Stories ‘Remembering – Those Touched By Leukodystrophy’. These stories are indeed inspirational and a credit to the love, dedication and commitment of all families living with Leukodystrophy. It has taken a great deal of courage for parents and adult sufferers to put pen to paper and write about their intense, life changing experiences. Overall there is such a strong sens...

September 15th, 2010 | Categories: Publication

Jewelry Sales

We have been very lucky to receive a donation of hand made jewelry from Veronica Seeber whose jewelry is sold in galleries in Western Australia under the name Fragments of a Dream. The jewelry the ALDS has received is sold in boxed sets of pendant and earrings or as a single pendant. Sets are $30, Pendants are $18 and Earrings are $12. If you would like to purchase a superb, individual piece of jewelry please contact our office. View Jewelry

September 14th, 2010 | Categories: News

Awareness Building

We continue to progress with our aim to increase the public awareness of Leukodystrophy and our group. The Longest Walk for an Aussie Kid and more recently the Sydney ALDS Fundraising Golf Days have both been a wonderful way of getting the word out to the public. We continue to increase links with Neurologists, Clinical Geneticists and allied Health Service Providers in Australia and internationally. Our promotional DVD will be used by families and friends of the ALDS to support public awarenes...

September 14th, 2010 | Categories: News